CHD
Connects Hearts
A CHD MASTERMIND
Connecting Hearts.
Empowering Families.
Revolutionizing CHD Care.
Welcome to CHD Connects Hearts — a movement built by families, for families.
Here, connection drives strength, collaboration sparks change, and no one walks this journey alone.
About CHD Connects Hearts
Congenital Heart Defect (CHD) families face more than a diagnosis — they face a lifetime of questions, battles, and broken systems.
For too long, our community has been fragmented.
Support scattered.
Resources siloed.
Families are navigating very challenging paths.
Adult warriors are not receiving the care they need.
We believe it doesn’t have to be this way.
We’re building something different — a united front where families, survivors, researchers, hospitals, foundations and advocates come together to drive real change.
A CHD Mastermind that is a private space for families, survivors, researchers, organizations and advocates to share strategies, solve challenges, and build strength together.
This isn’t just support — it’s action. Collaboration. Leadership.
Empower families with knowledge, tools, and community.
Because connection isn't optional — it's essential.
And together, we are stronger.
About
2,400,000 People
Are Living With CHD In The United States
Approximately
40,000 Infants
Are Affected By CHD Each Year
How We Create Change
Advocate
Unite voices across families, hospitals, and policymakers to demand better research, better treatment, and a future where CHD care is no longer fragmented.
Empower
Equip families with real-world tools, education, and support so they can advocate fiercely for their children — and for themselves.
Collaborate
Bring hospitals, researchers, foundtions, advocacy groups, survivors, and parents together to solve real problems — not just study them.
Connect
Build a living, breathing community where every family feels seen, heard, and supported — at every stage of the journey.
Innovate
Develop new tools like the CHD Passport, giving families and providers a better way to track care, spot problems early, and plan for the future.
Elevate
Raise the voices and stories of CHD families so the world sees not just the struggles — but the strength, the heart, and the unstoppable spirit.
Wherever you are on your CHD journey, there’s a group for you.
One Community. Six Tailored CHD Groups.
A supportive group to share experiences & insights, ensuring you never feel alone on this journey.
A dedicated group where fathers can connect & share their experiences & perspectives in a supportive setting.
A vibrant group for young individuals to connect, share, & empower one another as they navigate their unique challenges.
A group designed for adults living with CHD to discuss, collaborate, & find strength in shared experiences.
Honor & remember loved ones lost to congenital heart disease in a group for grief, love, & shared memories.
A resource providing current rankings and quick links to connect with renowned hospitals specializing in CHD care and research updates.
Copyright 2025. All Rights Reserved. Privacy Policy. Terms and Conditions.
DISCLAIMER: Our resources are for educational and informational purposes only. We do not offer any medical advice. Always follow and consult your medical team. Our aim is to provide supportive content, direction, and strategies for building community connections while facilitating crucial conversations about CHD.
Copyright 2025. All Rights Reserved. Privacy Policy. Terms and Conditions.
DISCLAIMER: Our resources are for educational and informational purposes only. We do not offer any medical advice. Always follow and consult your medical team. Our aim is to provide supportive content, direction, and strategies for building community connections while facilitating crucial conversations about CHD.