CHD

Connects Hearts

Connecting. Coming Together.

Revolutionizing the

CHD Community.

About Us


At CHD Connects Hearts, we are building something revolutionary—a

Centralized Hub that unites the entire CHD community under one powerful movement.

For too long, the CHD landscape has been fragmented—heart warriors, families, caregivers, researchers, medical professionals, and organizations working tirelessly, yet often in silos.

This fragmentation has slowed progress, limited access to resources, and created barriers to real change.

We are breaking down those barriers.

Through connection, empowerment, and collaboration, we provide one unified space where:

Heart warriors, families, and caregivers find trusted resources, advocacy tools, and tailored support. Foundations, researchers, and medical professionals gain direct access to the CHD community, amplifying their work. Advocates and policy leaders unite with those directly impacted by CHD, pushing for meaningful change.


How We Create Change

Advocate– Uniting voices to push for research funding, policy reform, and improved CHD care.

Empower– Providing individuals and families with education, resources, and self-advocacy tools.

Collaborate– Connecting organizations, researchers, and medical professionals with the CHD community to drive forward real solutions.

Fundraise– Enabling affiliates to fundraise through the Centralized Hub, creating new opportunities for foundations and organizations to grow their impact.

Support– Offering a Go As You Grow model where families, caregivers, and heart warriors have access to evolving support tailored to their journey.

Research– Providing direct access between researchers, data analysts, and the CHD community, ensuring that studies, clinical trials, and new advancements are informed by real-life experiences and needs.

Unify– Eliminating the silos that slow down progress, ensuring

the entire CHD community can work together seamlessly.

At CHD Connects Hearts, we are not just connecting people—we are

changing the future of CHD care, research, and advocacy.

We are building the infrastructure for long-term impact—one that

empowers families, amplifies research, and strengthens organizations

working toward the same goal: a better future for heart warriors.


This is not just a community. This is a movement.

Be part of the transformation.


Connect. Collaborate. Create Real Change.

About

2,400,000 People

Are Living With CHD In The United States

Approximately

40,000 Infants

Are Affected By CHD Each Year

One Community. Six Tailored CHD Groups.

Families Group

A supportive group to share experiences & insights, ensuring you never feel alone on this journey.

Fathers Group

A dedicated group where fathers can connect & share their experiences & perspectives in a supportive setting.


Teens Group

A vibrant group for young individuals to connect, share, & empower one another as they navigate their unique challenges.


Adults Group

A group designed for adults living with CHD to discuss, collaborate, & find strength in shared experiences.


Memorial Group

Honor & remember loved ones lost to congenital heart disease in a group for grief, love, & shared memories.


Hospitals & Research Group

A resource providing current rankings and quick links to connect with renowned hospitals specializing in CHD care and research updates.

Copyright 2025. All Rights Reserved. Privacy Policy. Terms and Conditions.

DISCLAIMER: Our resources are for educational and informational purposes only. We do not offer any medical advice. Always follow and consult your medical team. Our aim is to provide supportive content, direction, and strategies for building community connections while facilitating crucial conversations about CHD.

Copyright 2025. All Rights Reserved. Privacy Policy. Terms and Conditions.

DISCLAIMER: Our resources are for educational and informational purposes only. We do not offer any medical advice. Always follow and consult your medical team. Our aim is to provide supportive content, direction, and strategies for building community connections while facilitating crucial conversations about CHD.