Feeling Alone in the CHD Maze?

You Deserve Real Answers, Real People, and Real Support.

You're up again at midnight, worrying…

Your heart warrior’s next appointment feels like walking into the unknown.

You’re waiting on lab results.

You’re drowning in medical questions everyone else seems to answer—except you.

This is real life. This is living the CHD journey. You don't need to do this alone. You're done feeling isolated in living-room support groups.

You're tired of scattered resources that don’t help in the moment. You're done piecing together advice from strangers who don’t really get it.

Meet CHD Connects Hearts—built for families like yours. A private, tight-knit hub where people who truly understand come together.

You’re Not the Only One Asking...

Where Are You Right Now?

⭕ In Shock – Just Diagnosed / Still Pregnant


(Reeling from the words I never expected to hear, trying to make sense of a world that suddenly shattered.)

Post-Surgery Support (Norwood, Glenn, Fontan, Cath)


(Exhausted from the hospital walls, trying to find peace while watching monitors more than my baby’s eyes.)

Feeding Tube Questions / NG Weaning


(Every feed feels like a battle—filled with fear, guilt, and the relentless need to get it right.)

Cath and Surgical Readmission

(I thought I could finally exhale—now we’re back in it, blindsided again, and every part of me is bracing for the worst.)

Preparing for Next Steps


(The silence between surgeries is deafening—waiting feels like drowning in dread.)

Stable for Now


(I'm so grateful… but too scared to breathe easy, always waiting for the other shoe to drop.)

Stressed and Barely Surviving the Chaos


(Running on fumes, juggling meds, machines, appointments—and still expected to smile.)

Pregnancy After a Heart Warrior


(Haunted by what I've lived through, terrified to hope, afraid to fear.)

Grief, Uncertainty & Loss


(The world kept spinning while mine stopped—I carry what no parent should have to hold.)

Teen Parent Planning for Adult CHD Care


(How do I prepare my child to carry what I've carried for them all these years?)

Adult CHD Care but Lost


(I survived this far, but the roadmap isn't as clear from here—and I'm left navigating blindly.)

Built for CHD Families by CHD Families

We built this for the moments when your doctor walks out and you still don’t have answers. When Google scares you more than it helps. When you're too tired to explain it again.

What You Get:

  • Specialized support groups based on diagnosis, treatment phase, or emotion

  • Hospital comparisons from other parents

  • Hospital Quick Links for easier research

  • Real stories, real struggles, real survival

  • Live sessions with parents, therapists, foundations and advocates

What happens after you join?

  • Book your intake chat with Momma C

  • Jump into your group and start sharing

  • Join the next live session, get support where you need it most

You're ready for this.

No more ignoring that gut feeling.

No more scrambling alone.

You've got to get through today

-and tomorrow.

Start here-connected, resourced, empowered.

Fast Help for Hard Moments

Just had a cath? Scared after discharge? No one to call? We’ve got parents who’ve been there. Jump into the Rapid Response Group.

We’re not a Facebook group. We’re not another medical page.

We’re a living, breathing network of people who refuse to let CHD isolate us.

Copyright 2025. All Rights Reserved. Privacy Policy. Terms and Conditions.

DISCLAIMER: Our resources are for educational and informational purposes only. We do not offer any medical advice. Always follow and consult your medical team. Our aim is to provide supportive content, direction, and strategies for building community connections while facilitating crucial conversations about CHD.

Copyright 2025. All Rights Reserved. Privacy Policy. Terms and Conditions.

DISCLAIMER: Our resources are for educational and informational purposes only. We do not offer any medical advice. Always follow and consult your medical team. Our aim is to provide supportive content, direction, and strategies for building community connections while facilitating crucial conversations about CHD.