CHD
Connects Hearts
Connecting. Coming Together.
Revolutionizing the
CHD Community.
At CHD Connects Hearts, we are building something revolutionary—a
Centralized Hub that unites the entire CHD community under one powerful movement.
For too long, the CHD landscape has been fragmented—heart warriors, families, caregivers, researchers, medical professionals, and organizations working tirelessly, yet often in silos.
This fragmentation has slowed progress, limited access to resources, and created barriers to real change.
We are breaking down those barriers.
Through connection, empowerment, and collaboration, we provide one unified space where:
Heart warriors, families, and caregivers find trusted resources, advocacy tools, and tailored support. Foundations, researchers, and medical professionals gain direct access to the CHD community, amplifying their work. Advocates and policy leaders unite with those directly impacted by CHD, pushing for meaningful change.
✔Advocate– Uniting voices to push for research funding, policy reform, and improved CHD care.
✔Empower– Providing individuals and families with education, resources, and self-advocacy tools.
✔Collaborate– Connecting organizations, researchers, and medical professionals with the CHD community to drive forward real solutions.
✔Fundraise– Enabling affiliates to fundraise through the Centralized Hub, creating new opportunities for foundations and organizations to grow their impact.
✔Support– Offering a Go As You Grow model where families, caregivers, and heart warriors have access to evolving support tailored to their journey.
✔Research– Providing direct access between researchers, data analysts, and the CHD community, ensuring that studies, clinical trials, and new advancements are informed by real-life experiences and needs.
✔Unify– Eliminating the silos that slow down progress, ensuring
the entire CHD community can work together seamlessly.
At CHD Connects Hearts, we are not just connecting people—we are
changing the future of CHD care, research, and advocacy.
We are building the infrastructure for long-term impact—one that
empowers families, amplifies research, and strengthens organizations
working toward the same goal: a better future for heart warriors.
This is not just a community. This is a movement.
Be part of the transformation.
Connect. Collaborate. Create Real Change.
A supportive group to share experiences & insights, ensuring you never feel alone on this journey.
A dedicated group where fathers can connect & share their experiences & perspectives in a supportive setting.
A vibrant group for young individuals to connect, share, & empower one another as they navigate their unique challenges.
A group designed for adults living with CHD to discuss, collaborate, & find strength in shared experiences.
Honor & remember loved ones lost to congenital heart disease in a group for grief, love, & shared memories.
A resource providing current rankings and quick links to connect with renowned hospitals specializing in CHD care and research updates.
DISCLAIMER: Our resources are for educational and informational purposes only. We do not offer any medical advice. Always follow and consult your medical team. Our aim is to provide supportive content, direction, and strategies for building community connections while facilitating crucial conversations about CHD.
DISCLAIMER: Our resources are for educational and informational purposes only. We do not offer any medical advice. Always follow and consult your medical team. Our aim is to provide supportive content, direction, and strategies for building community connections while facilitating crucial conversations about CHD.