We Can’t Afford to Stay Comfortable.
Facebook groups have been lifelines for CHD families.
They gave us support when we felt alone, helped us survive the scariest moments, and connected us to people who understood.
But now—our community has outgrown the chaos of scattered conversations.
Families are still isolated. Research is disconnected. Progress is stalling.
It’s time for something more:
One place. One voice. One connected community.
And to the incredible leaders who’ve been holding the line—we see you.
CHD Connects Hearts isn’t here to replace you. It’s here to connect all of us. Together, we’re stronger.
It starts with you.
We’ve Outgrown the System
What got us here - won’t get us there.
CHD families are spread across hundreds of Facebook groups.
Parents are asking the same questions in ten different places.
Teens are isolated. Adults are invisible. Researchers can't reach the families they’re trying to help.
The support we have is passionate — but it’s scattered, siloed, and unsustainable.
Organizations are doing great work, but they’re disconnected from each other — and from the very people they serve.
It’s not your fault.
It’s the system we’ve inherited.
But now — we have the chance to build something better. Together.
While we stay fragmented, progress stays stalled:
Research funding lags decades behind other conditions
Advocates can’t align on priorities
And families burn out trying to piece it all together on their own
CHD Connects Hearts: The Power of One Connected Hub
The missing link we’ve needed all along.
Imagine one place where CHD families, teens, adults, fathers, grieving parents, researchers, and organizations are all connected.
Not another group.
Not another nonprofit.
Not a replacement for what’s already working
CHD Connects Hearts is the unifying hub—built to connect what’s been scattered, amplify what’s been quiet, and bring our collective power into one focused space.
Inside, you’ll find:
Tailored community groups for every role and every stage
Direct access to resources, research updates, and lived-experience support
A platform designed around connection, not control
Our mission is simple:
We’re not just connecting.
We’re building the CHD revolution—one voice, one mission, one unstoppable community.
6 Groups. One Heart. Unlimited Connection.
CHD Connects Hearts isn’t just one group. It’s a connected ecosystem—built to meet you exactly where you are.
Every diagnosis. Every role. Every age. Every stage.
Inside, you’ll find six specialized community groups, each with multiple channels to give you exactly what you need without the noise:
👨👩👧 Families
From expecting parents to parents of adults with CHD. Grouped by age (0–5, 6–12, 13–18, 18+) plus support for grandparents, special needs, hospice, feeding tubes, and more.
🧠 Teens Only
Safe, age-appropriate spaces for middle and high school students. Screened and background checked adults for supervision. No judgment. Just connection.
👨 Fathers Only
For dads, by dads. Emotional support, grief, bonding, role balancing, financial strategies, and father-led resilience.
🌈 Memorial
Honoring the Heart Warriors we’ve lost. A gentle, sacred space for grieving families to connect, remember, and breathe.
🫀 Adults with CHD
Resilience. Relationships. Future planning. A group for adults living with CHD who are ready to live, love, and lead.
🏥 Hospital & Research
A central access point to the top 50 hospitals, latest CHD research, clinical trials, and a bridge between medical teams and the families they serve.
"No more noise. No more wandering. Just the right conversations, in the right place, with the right people—finally under one roof." - Momma C, Founder of CHD Connects Hearts
Sneak Peek Inside The Community
Built by CHD Families, For CHD Families
CHD Connects Hearts was born in a moment of overwhelming fear.
When my grandson Hunter was diagnosed with HLHS, I did what every CHD family does: I searched, I scrolled, I clung to strangers in Facebook groups just trying to survive.
But as time went on, I realized something devastating — we’re all doing this alone, together.
Hundreds of groups. No structure. No roadmap. No real way to move forward together.
So we built the thing we needed most.
A place where families, fighters, researchers, and supporters could finally connect.
Not to replace what’s working—but to finally bring it all under one roof.
“When Hunter was diagnosed, I searched for answers and found hundreds of voices—none connected. CHD Connects Hearts is the place I wish we had. So I built it—for all of us.” — Momma C, Founder of CHD Connects Hearts
You In? Just $2 Tech Fee/Month to Unite the CHD Community
✨ What connecting unlocks:
Access to all 6 specialized community groups
Invitations to live events, research updates, and support sessions
A noise-free space built around your journey, not social media algorithms
A chance to help reshape the future of CHD — not just survive itYou’ve felt the fragmentation.
You’ve felt the fragmentation.
You’ve carried the weight.
You’ve shown up — now it’s time to connect.
For just $2/month Tech Fee, you can become a founding member of the most powerful, inclusive, and action-driven CHD community ever built.
Future plans include a “pay what you can” model, but founding members who join now lock in at just $2/month Tech Fee and help fuel the movement.
“I’ve spent years in Facebook groups. This platform is the future of our community.” — New Member
Guarantee Statement:
No risk. Cancel anytime. Stay as long as you need, come back when you’re ready.
The CHD Community Speaks
You’re not the only one who’s felt overwhelmed, isolated, or stuck in the noise.
These are the voices of families, warriors, and caregivers who needed more — and found it here.
Community Voice:
“This is what I wish existed when we were first diagnosed.”
— CHD Mom, HLHS“For the first time, I feel like the research world is actually within reach.”
— Adult CHD Survivor“We needed a map. This community is the map.”
— Grandparent Caregiver
You’re Not Just Connecting. You’re Changing Everything.
You’ve made it this far for a reason.
You’ve felt the disconnection. You’ve lived the chaos.
Now, you get to be part of the solution.
Join CHD Connects Hearts today and become part of the most unified, inclusive, and action-driven CHD movement to ever exist.
One click. One voice. One community finally… connected.
You’re Not the Only One Asking...
Copyright 2025. All Rights Reserved. Privacy Policy. Terms and Conditions.
DISCLAIMER: Our resources are for educational and informational purposes only. We do not offer any medical advice. Always follow and consult your medical team. Our aim is to provide supportive content, direction, and strategies for building community connections while facilitating crucial conversations about CHD.
Copyright 2025. All Rights Reserved. Privacy Policy. Terms and Conditions.
DISCLAIMER: Our resources are for educational and informational purposes only. We do not offer any medical advice. Always follow and consult your medical team. Our aim is to provide supportive content, direction, and strategies for building community connections while facilitating crucial conversations about CHD.